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Citizenship and Humanisation of the Public Sector

Perceptions of client dependency (completed)

  • Start: 2017
  • Status: completed

What is it like, to need to wait for help because you cannot dress yourself due to a multiple disability? As a parent, do you dare speak up if you’re not happy about some aspect of the care for your child with a mental disability? Questions such as these play a key role in a study into the perceptions of dependency among people with a disability and their family members, commissioned by the Ministry of VWS (Public health, welfare and sports) and performed by the University of Humanistic Studies, completed in 2018. 

Description

In the project ‘Perceptions of client dependency', researchers mapped out how people with a disability and their family members experience dependency. They also examined how to prevent negative perceptions of dependency, and whether people with a disability can personally influence the care they receive or the associated policy making. The researchers closely followed people with a disability and their caregivers throughout the Netherlands to experience and to hear first-hand what it is like to be dependent. 


People with a disability participated in the study, for example by making photographs to show how they experience dependency. A professional photographer also contributed to the project. A selection of the photographs was displayed in the Outsider Art Gallery of care organisation Cordaan in the Hermitage Museum in Amsterdam. 


A page has been set up specifically for people with a disability, with an animation and further explanations: www.uvh.nl/afhankelijkheid (in Dutch).

Researchers

Results and publications

Also see

Contact

Simon van der Weele, s.vanderweele@uvh.nl
Femmianne Bredewold, f.bredewold@uvh.nl

A study into the perceptions of dependency among people with a disability and their family members, commissioned by the Ministry of VWS.