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CO-LIVE project: the impact of the COVID-19 pandemic on death and bereavement

  • Start: 2020
  • Status: ongoing

The corona crisis has many consequences for care, especially care in the last phase of life. It is difficult to say goodbye properly to a loved one. This situation is also complicated for care providers. That is why we now want to map out how people experience this situation and what lessons we can draw from it for the future. The aim of this study is to find the balance between safe care and the needs of dying patients and their families.

Description

Relatives and caregivers are asked about their experiences with end-of-life care for someone who died during the COVID-19 pandemic. This is done via online questionnaires and interviews. 


The research should lead to:

  • understanding what bereaved families and carers consider high quality end-of-life care during the COVID-19 pandemic;
  • understanding of what hinders and facilitates grieving for family members during the COVID-19 pandemic;
  • early identification of complicated grief in bereaved families and long-term problems and burnout in caregivers.

The results are translated into practice in the form of guidelines for high-quality and safe end-of-life care.

Researchers

Project leader: Dr Ida Korfage (Erasmus MC).
The project group includes researchers from Erasmus MC, Amsterdam UMC and Rotterdam University. Professor Anne Goossensen is involved on behalf of the University for Humanistic Studies.

Partners

Via Stichting PALZON, Erasmus MC, Amsterdam UMC, LUMC, UMC Utrecht, UMC Groningen, Maastricht UMC, Radboud UMC en Hogeschool Rotterdam are working together. 

(Co-)financiering

ZonMW, COVID-19 Programme

Results

10 bevindingen vanuit de eerste golf (pdf, in Dutch)
10 findings from 1100 questionnaires and 40 interviews with caregivers and next of kin.

Also see

Contact

Prof Anne Goossensen, A.Goossensen@UvH.nl.

The corona crisis has many implications for care in the last phase of life. The aim of this study is to find the balance between safe care and the needs of dying patients and their families.